Comments on: Mickelson reveals serious arthritis condition

By: Sasha

Sasha — Tue, 05 Nov 2013 10:16:09 +0000

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By: barbara hensley

barbara hensley — Tue, 19 Jul 2011 21:05:00 +0000

my niec, mary gavartar,has been using enbrel (she has had socriasas arthritis for several years. she had been using enbrel with great results but her insurance has decided it will not pay fo 2 shots a week. she is really having a very hard time now. her soricisis is very bad and she is in a lot of pain from from her arthritis. she really needs help. thank you, barbara hensley — calabash, nc 28467

By: Jennifer

Jennifer — Thu, 09 Jun 2011 03:42:26 +0000

Ellen Ijust stopped using Enbrel due to many infection,I could not pay for it,so I went to the makers of Enbrel and they had many programs for people who can afford it.I ended up only having to pay 30.00 for a three months supply.Enliven was the program that help pay for mine.
I just would like Phil and everyone else to know that in 2006 my mother passed away at age 59 due to psoriatic arthritis.I’ll explain,she devolped a disorder from PsA called Amyloidosis,which happens when one has inflammation in their body for years.What happens is the protien(inflammation)start to deposite into your body organ’s,such as your kidneys,liver,heart,lungs,etc. and after so many years of this happening the protien will start to shut down or make the organs malfuntion,and if it is found in your fatty tissue then there is real nothing that can be done,they give you at most five years.Whats sad is not long after her kidney’s shut down,I was diagnosed w/PsA,so I watched hers died from the side effects of PsA,Amyloidosis.Everyone needs to look it up and be aware it(PsA)what can happen if not diagnosed and treated in time.This is the 10th year for me and I was told by my rhumey that since I have not been in remission yet in ten yrs. then I have only have a 5% chance in ever be in remission,I am only 38.What happen with my mom,was she went in to have her galbladder taken out and one week later her kidney’s shut down,she was on dialysis for 6 yrs and then the next thing we know she is in ICU and that’s the first time we learn about why her kidneys stopped working.I tried for six yrs.to find out why and the doctors just didn’t know why.Two weeks before she past is when they told us about the Amyloidosis and that what shut her kidneys down.
I guess what I would like to get across is that PsA is very dangerous and its more then just arthrits and not to be taken lightly,find out everything you can about it,so that you or your loved one will not have to go thougth what my mom did.
Jennifer

By: ellen

ellen — Thu, 21 Apr 2011 22:49:15 +0000

My son has been diagnosed with psoriatic arthritis and is getting enbrel injections once a week. The shots are extremely expensive, and his insurance company won’t pay for the drug. Is there a foundation for patients with this condition who need help paying for the drug?

Thanks

By: Chelsea

Chelsea — Wed, 20 Apr 2011 00:30:49 +0000

Phil, I know exactly what you are going through! I have a similar condition called ankylosing spondylitis, which mainly effects the joints in the lower extremities. I was diagnosed about 2 years ago when I was 17, and even had to have total hip replacements. I know everyone always tells me that “I am too young” to have those procedures, but it happened for a reason. As you know, usually athletes and stars have a major pull on certain charity’s, and knowing that you will support the research in this field in the future is nice to know! I am now a golf fan because of how you deal with your condition as an athelete!

By: Donna

Donna — Mon, 18 Apr 2011 00:54:34 +0000

Phil, I recommend that you read a book “The New Arthritis Breakthrough”. Written by Henry Scammell and Dr. Thomas McPherson Brown. This is a landmark book that first set forth the infectious theory and the rationale for antibiotics in rheumatoid arthritis. I am on the antibiotic protocol for 18 months now. I am so much better than I was. I’m still not in remission but I suspect if I progressively keep improving in another year I might be able to say “I’m in remission”. This is not mainstream therapy but it works for me. It may be worth your while to check it out.

By: Annette

Annette — Thu, 07 Apr 2011 00:45:41 +0000

Hello Phil,I have had psoriasis and psoriatic arthritis for several years. I have tried methotrexate and humira which did not work all that well for me. My doctor wants to try intervenous enbrel.I also recently had cancer. I think the stress has made my arthritis worse.I could have cried when I saw you on television talking about your experience. So few people understand this disease that affects so many. I keep going I’m not going to let it ruin my life. I’m so glad you are doing well. I have a wonderful doctor at Tufts Medical Center in Boston. Her name is Dr. Alice Gottlieb. She is board certified in dermatology, rhematology and internal medicine. She is a world renowned lecturer on Psoriasis and PA.If you need anyone in the future she is great. Best of luck with the Masters I don’t like golf but I’ll be cheering for you!

By: Trish

Trish — Wed, 06 Apr 2011 16:24:32 +0000

Hello phil, I have used enbrel since it first came out. 2 x week, 25 mg. It gave me a new life. I noticed one thing you might be interested in… When you flew to Hawaii you had a flare up. Changing altitutes will do it; in the air or on the ground.I am in my 70’s so I am not too worried about the side effects. I suspect stress trigered my case and more than likely the same with you. I was a police officer and my adrenaline would get going sometimes 2-3 times a day. Anyway, you are on the right track and I wish you much sucess and good health that you might lead an active life when you get as old as I am.Keep moving!!